I see the best divide for Multiple Sclerosis is dividing it into 2 parts for now MS (Multiple Sclerosis) and CCSVI (Chronic Cerebelar Spinal Venous Insufficiency) which is a vein impairment and is probably in many neurovascular disease. I believe that venous anomalies called CCSVI thanks for this Dr. Zamboni was a major factor that ultimately manifested itself as Multiple Sclerosis.
Some Factors that may have lead to the MS CCSVI catastrophe
Epigenetics is it genetic? or is it the the slow destruction of your genetic makeup over time by many factors such as stress, trauma, diet, exercise and probably several other factors such as smoking. What kind of disease is MS (Multiple Sclerosis)?
Grandma's Experiences Leave a Mark on Your Genes
Your ancestors' lousy childhoods or excellent adventures might change your personality, bequeathing anxiety or resilience by altering the epigenetic expressions of genes in the brain.
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Along came CCSVI which provided a different way to look at the disease called MS (Multiple Sclerosis) as a vascular problem that leads to the neurological destruction were nothing can be done and why not because the cells are very badly damaged or maybe completely dead by now
The Society for Vascular Surgery® (SVS) is a not-for-profit professional medical society, composed primarily of vascular surgeons , that seeks to advance excellence and innovation in vascular health through education, advocacy, research and public awareness. SVS is the national advocate for 5,400 specialty-trained vascular surgeons and other medical professionals who are dedicated to the prevention and cure of vascular disease.
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Multiple Sclerosis--the vascular connection
From Rindfliesch's discovery of the central vessel in the MS lesion in 1863, to Dr. Paolo Zamboni's discovery of Chronic Cerebrospinal Venous Insufficiency. 150 years of MS research on blood flow and perfusion of the central nervous system. Because the heart and the brain are connected.
Welcome! This blog contains research, information on lifestyle, nutrition, dietary supplements and health for those with MS, as well as continuing information on the understanding of CCSVI and cerebral hypoperfusion . This blog is informative only--all medical decisions should be discussed with your own physicians.
The posts are searchable---simply type in your topic of interest in the search box at the top left.
Almost all of MS research is initiated and funded by pharmaceutical companies. This maintains the EAE mouse model and the immune paradigm of MS, and continues the 15 billion dollar a year MS treatment industry. But as we learn more about slowed blood flow, gray matter atrophy, and environmental links to MS progression and disability--all things the current drugs do not address--we're discovering more about how to help those with MS.
To learn how this journey began, read my first post from August, 2009. Be well! Joan
Chronic CerebroSpinal Venous Insufficiency
Welcome to CCSVI Alliance!
Chronic Cerebrospinal Venous Insufficiency (CCSVI) is a recently documented vascular condition that may profoundly change the way we think about MS and other neurological diseases. Compelling research over the past several years supports continued investigation into the link between CCSVI, MS, and other neurological diseases. This site addresses critical aspects of CCSVI, from theory to research to treatment, providing original analysis and discussion that should engage both newcomers and medical professionals alike. For those just learning about CCSVI, we encourage you to begin in our Basics section for a pragmatic introduction to key aspects of CCSVI theory and treatment. For physicians, researchers, and patients looking for more sophisticated analysis, we hope you enjoy our Advanced Topics section, where all content has been reviewed and vetted by a world-class team of medical professionals whose expertise ranges from neurology to interventional radiology to imaging and physics. You can also find a searchable database of peer-reviewed research into CCSVI. We understand, however, that patient and physician interests run beyond pure research and hard facts. Accordingly, we have provided a dedicated section on Patient Perspectives, including patient experiences during and after CCSVI treatment, and questions and answers for potential patients. Our Helping Yourself section summarizes practical approaches to maintaining vascular health, as well as tips for talking to physicians about CCSVI. Visit our Facebook page for the latest information related to CCSVI and to connect with others interested in staying abreast of the news.
Our aim is to provide patients, caregivers, and medical professionals with a definitive resource for learning more about CCSVI - the science, the process, and the patient experience. As more research emerges, replacing mysteries with data and speculations with fact, we will be here, objective and clear. Opening veins, opening minds. Let's get started! - CCSVI Alliance
The purposes of the International Society for Neurovascular Disease (ISNVD) are:
- To promote communication, research, development, applications, and the availability of information on neurovascular and related neurodegenerative diseases such as multiple sclerosis internationally;
- To develop and provide channels and facilities for continuing education and communication in the field, to publish and assist in the publishing of journals and other publications in the field;
- To provide information and advice on those aspects of public policy which are concerned with neurovascular disease and other related topics, and otherwise to perform charitable, scientific and educational functions with respect to studying such diseases in terms of research and treatment;
- To work with or for, and to co-operate with local, regional and national governments and governmental and private agencies, organizations, firms and institutions in efforts to accomplish one or more of the above purposes and
- To ensure that scientists and clinicians working in the field have equal and fair opportunities to contribute to it.
The ISNVD is dedicated to the dissemination and review of new concepts in etiopathogenesis, novel diagnostics and modes of therapeutic treatment in the diseases of the neurovasculature. The society does not endorse specific products, treatment modalities or procedures but encourages the free exchange of information which may lead to peer reviewed research and clinical studies.
President Salvatore Sclafani, M.D. President Elect Open Vice President Steve Alexander, Ph.D. Immediate Past President Ziv Haskal, M.D. Executive Director/Treasurer
Robert Zivadinov, Ph.D., M.D.Chair Annual Meeting Program CommitteeSteve Alexander, Ph.D.ChairpersonHector Ferral, M.D.ChairpersonE. Mark Haacke, Ph.D.ChairpersonPaolo Zamboni, M.D.ChairpersonMichael Dake, M.D.ChairpersonCarol Schumacher, M.S.
Finance Committee Robert Zivadinov
David Hubbard Nominating Committee Salvatore Sclafani
Paul Thibault Annual Meeting Program Committee Mark Haacke
Chih-Ping Chung Awards Committee Marian Simka
Alireza Minagar Publications Committee E. Mark Haacke
Clive Beggs Education Committee Karen Marr
Adnan H. Siddiqui
Marcello Mancini Governance Committee Marian Simka
Joseph Hewett Section and Affiliations Committee Zahid Latif
Nikolaos Liasis Safety Committee Adnan Siddiqui
Bulent Arslan Public Relations Committee Sandy McDonald
Veins and Lymphatics
Veins and Lymphatics Veins and Lymphatics is a new, internet-based, international, Open Access peer-reviewed journal which publishes scientific papers about venous and lymphatic diseases. Open issues and debates about epidemiology, anatomy, pathophysiology, etiology, diagnosis, treatment and prevention of vein and lymphatic diseases are constantly present in our project. Read more
THE CCSVI FOUNDATION OF CANADA
Opening the Pathways of Life
Imagine the feeling of regaining movement in your limbs, to be able to stand, to freely move after being bound to a wheelchair for an extended period of time!
Our founder and president is one such case, his name is Steve Garvie, who has been interviewed by W5, The Nature of Things, and CBS.
Steve suffered with MS and was wheel chair bound for many years. He underwent this procedure, and was able to partake in the father/daughter dance at his daughters wedding.
Your CCSVI Foundation
We are a national, non-profit organization, committed to the treatment of patients with Chronic Cerebral Spinal Venous Insufficiency (CCSVI)
CCSVI is a diagnosis by itself. It has been found in individuals suffering with M.S., Parkinson's, Alzheimer's, Chronic Fatigue Syndrome and Autism.
The CCSVI Foundation of Canada will raise awareness and funds, while working with patients in partnership to obtain access to treatment.
We also work in partnership with international specialists in the treatment of CCSVI with proven results to ensure the best outcome for treatments.
The treatment for CCSVI is a vascular balloon angioplasty, which is a slightly invasive procedure. The procedure is performed as an outpatient treatment and the patient is awake during the procedure. This procedure has been successfully performed on both ambulatory and non-ambulatory patients.
Worldwide, there have been well over 30,000 patients treated, with few complications.
What Is CCSVI?
CCSVI is a blockage of the Jugular and or the azygos veins, which return deoxygenated blood back to the circulatory system. This blockage causes deoxygenated blood to be trapped in the brain and is sometimes flushed back into the brain, which is called reflux.
These are clear blockages that are clearly seen via Doppler or an F-MRI and recognized by vascular surgeons and interventional radiologists
BARRIE - DR. SANDY McDONALD
Cardiovascular Thoracic Surgeon
is accepting 250 CCSVI patients to observe treatment for M.S.
2 Studies - A) Pre and Post treatment study (involves ultrasounds, trial on 250 patients)
B) Follow up of anyone who has received treatment - (no patient limit)
To collect more statistics regarding the procedure.
PLEASE CALL - BARRIE VASCULAR IMAGING (705) 722 - 8738 ***phone lines are busy so please be patient***
or you can email:
Angela Legace - Chief Stenographer and Office Manager - firstname.lastname@example.org
HELP CIRCULATE THIS PETITION SEND TO M.P. DR. KIRSTY DUNCAN TO BE READ IN PARLIAMENT REGULARLY. PLEASE FOLLOW THE SPECIFIC INSTRUCTIONS AND ONLY USE THE PETITION PROVIDED BELOW. Petition & Instructions.
Interested in Helping? Go to "Board of Directors & Fellows" or send us an email.
THE EVOLUTION OF PSYCHIATRY
In this keynote address, Dr Kelly Brogan outlines a new vision for the evolution of psychiatry, involving a whole body approach to understanding and treating mental illness.
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Dr. Andrew Thomas Weill Dr. Andrew Thomas Weil on Wikipedia
How I dealt with my Multiple Sclerosis
David Agus: A new strategy in the war on cancer Filmed October 2009 at TEDMED 2009
Why you should listen
David Agus is a medical doctor and a Professor of Medicine at the University of Southern California. However, he is also the founder of a couple of game-changing medical initiatives. In 2006, he co-founded Navigenics with Dietrich Stephan, Ph.D., to form a company that would provide people with their individual genetic information, allowing them to act on any predispositions to disease that they might have and prevent onset. He also founded Oncology.com which was the largest cancer Internet resource and community.
Dr. Agus' research is focused on the application of proteomics and genomics in the study of cancer, as well as developing new therapeutic treatments for cancer. He serves as Director of the USC Center for Applied Molecular Medicine and the USC Westside Prostate Cancer Center. Agus is also the recipient of several honors and awards, including the American Cancer Society Physician Research Award, a Clinical Scholar Award from the Sloan-Kettering Institute and the International Myeloma Foundation Visionary Science Award.
Too often, says David Agus cancer treatments have a short-sighted focus on individual cells. He suggests a new, cross-disciplinary approach, using atypical drugs, computer modeling and protein analysis to diagnose and treat the whole body.