sohomojo - helping to deal with a neurovascular disease

Multiple Sclerosis & CCSVI
The reason the neurological part happens is because there is a vascular dysfunction, a slow stroke.
CCSVI -- A real vascular dysfunction

A Vascular problem led to the crippling nightmare of Multiple Sclerosis
The real Multiple Sclerosis nightmare started at the point of diagnosis

The disaster of diagnosis being made by general physical observation over time,.
Especially when Time is something you can’t afford.

MS/CCSVI - like a toothache: One day it will be seen just as ridiculous and cruel to deny people with MS/CCSVI a simple Venous/angioplasty procedure as to deny a person with an excruciating toothache a filling; imagine if fillings where illegal?

It looks like Multiple Sclerosis but behaves like Lyme and its very many co-infections, bring proper diagnosis to the problem.

http://sohomojo.ca/

Learn More

Effects of Venous Angioplasty on Cerebral Lesions in Multiple Sclerosis: Expanded Analysis of the Brave Dreams Double-Blind, Sham-Controlled Randomized Trial.

Zamboni P1, Galeotti R2, Salvi F3, Giaquinta A4, Setacci C5, Alborino S6, Guzzardi G7, Sclafani SJ8, Maietti E9, Veroux P4; Brave Dreams Research Group.

Author information

1HUB Center for Venous and Lymphatics Disorders of the Emilia Romagna Region, S. Anna University Hospital, Ferrara, Italy.2Unit of Interventional Radiology, S. Anna University Hospital, Ferrara, Italy.3IRCCS of the Neurosciences, Bellaria Hospital, Bologna, Italy.4Unit of Vascular Surgery and Transplantation, University of Catania, Italy.5Unit of Vascular Surgery, University of Siena, Siena, Italy.6Unit of Radiology, Macerata Hospital, ASUR Marche, Italy.7Unit of Interventional Radiology, Ospedale Maggiore, Novara, Italy.8Department of Radiology, New York State University in Brooklyn, New York, USA.9Department of Biomedical and Neuromotor Sciences, University of Bologna Center for Clinical Epidemiology, School of Medicine, University of Ferrara, Italy.

Fooled by what is real and what is not

Is it MS, CCSVI, Lyme or its co-infections - failure at the point of diagnosis

Fooled by what is real and what is not!

Multiple Sclerosis -- falsehood to misdirect by neurologists that it is a neurological problem; when the neurological problems are caused by Vascular issues - a slow stroke - fooled

Why I believe this to be true for me is that my life was very stressed, my Mothers life was very stressed, my Grandmothers life was very stressed. Both my mother and my grand mother lived through WWII. My Mother as a little and my Grandmother as an adult Woman with a husband that was a marine

The real Multiple Sclerosis nightmare started at the point of diagnosis
http://sohomojo.ca

"Now a New York Times Bestseller! The bestselling author of The Brain That Changes Itself presents astounding advances in the treatment of brain injury and illness In The Brain That Changes Itself, Norman Doidge described the most important breakthrough in our understanding of the brain in four hundred years: the discovery that the brain can change its own structure and function in response to mental experience—what we call neuroplasticity. His revolutionary new book shows, for the first time, how the amazing process of neuroplastic healing really works. It describes natural, non-invasive avenues into the brain provided by the forms of energy around us—light, sound, vibration, movement—which pass through our senses and our bodies to awaken the brain’s own healing capacities without producing unpleasant side effects. Doidge explores cases where patients alleviated years of chronic pain or recovered from debilitating strokes or accidents; children on the autistic spectrum or with learning disorders normalizing; symptoms of multiple sclerosis, Parkinson’s disease, and cerebral palsy radically improved, and other near-miracle recoveries. And we learn how to vastly reduce the risk of dementia with simple approaches anyone can use. For centuries it was believed that the brain’s complexity prevented recovery from damage or disease. The Brain’s Way of Healing shows that this very sophistication is the source of a unique kind of healing. As he did so lucidly in The Brain That Changes Itself, Doidge uses stories to present cutting-edge science with practical real-world applications, and principles that everyone can apply to improve their brain’s performance and health."

Why Vascular Medicine?

Vascular disease is common. It is hard to believe that any of you do not know someone with vascular disease. It is a leading cause of illness and death in the modern world. Vascular disease is also important. It can affect most critical organs like the brain and the kidneys. People who have vascular disease may become incredibly limited. So, why vascular disease? Think impact!

Our logo is a symbol of the way we think about Vascular Medicine. The Angiologist.com is dedicated to empowering both patients and caretakers by giving them knowledge. The knowledge will help them grow just like the blood vessel turning into a tree in our logo.

How I think the whole Multiple Sclerosis Dilemma happened to me and some variation may have happened to you but this happened to me.

The problems for me was:

Epigenetics - From Discover Science for the curious
Grandma's Experiences Leave a Mark on Your Genes

Your ancestors' lousy childhoods or excellent adventures might change your personality, bequeathing anxiety or resilience by altering the epigenetic expressions of genes in the brain.

By Dan Hurley|Thursday, June 25, 2015

Stress - Stress is a big factor in many ailments -

Cortisol: Why “The Stress Hormone” Is Public Enemy No. 1

5 simple ways to lower your cortisol levels without drugs

Diet - Many don't eat well largely because of a busy lifestyle don't have time to cook or I was busy all day I will stop for a hamburger
Both Bad nature and bad nurture -
Time - The major factor that was used against me by neurology to keep me on the very wrong path of neurodegeneration. Eventually I gave up on neurology and found myself a vascular specialist and said to myself that I would never see a neurologist again

"Now a New York Times Bestseller! The bestselling author of The Brain That Changes Itself presents astounding advances in the treatment of brain injury and illness In The Brain That Changes Itself, Norman Doidge described the most important breakthrough in our understanding of the brain in four hundred years: the discovery that the brain can change its own structure and function in response to mental experience—what we call neuroplasticity. His revolutionary new book shows, for the first time, how the amazing process of neuroplastic healing really works. It describes natural, non-invasive avenues into the brain provided by the forms of energy around us—light, sound, vibration, movement—which pass through our senses and our bodies to awaken the brain’s own healing capacities without producing unpleasant side effects. Doidge explores cases where patients alleviated years of chronic pain or recovered from debilitating strokes or accidents; children on the autistic spectrum or with learning disorders normalizing; symptoms of multiple sclerosis, Parkinson’s disease, and cerebral palsy radically improved, and other near-miracle recoveries. And we learn how to vastly reduce the risk of dementia with simple approaches anyone can use. For centuries it was believed that the brain’s complexity prevented recovery from damage or disease. The Brain’s Way of Healing shows that this very sophistication is the source of a unique kind of healing. As he did so lucidly in The Brain That Changes Itself, Doidge uses stories to present cutting-edge science with practical real-world applications, and principles that everyone can apply to improve their brain’s performance and health."

"It has been found that many people with MS have blocked internal jugular veins. Many also have a blocked azygos (chest) vein. The blockage of these critical veins prevents adequate drainage of blood from the brain and spine.

This venous disorder is called Chronic Cerebrospinal Venous Insufficiency (CCSVI). A growing number of vascular specialists believe that CCSVI contributes to the symptoms of MS. Others believe it causes MS.

There is a long history of science which indicates that vascular abnormalities are associated with MS.

Other neurological conditions, such as Parkinson’s Disease, may also be associated with CCSVI."

AHA POLICY RECOMMENDATIONS

Improving Quality of Care Through Disease Management

Principles and Recommendations From the American Heart Association’s Expert Panel on Disease Management

David P. Faxon, Lee H. Schwamm, Richard C. Pasternak, Eric D. Peterson, Barbara Joyce McNeil, Vincent Bufalino, Clyde W. Yancy, Lawrence M. Brass, David W. Baker, Robert O. Bonow, Lynn A. Smaha, Daniel W. Jones, Sidney C. Smith, Gray Ellrodt, Jerilyn Allen, Sanford J. Schwartz, Gregg Fonarow, Pam Duncan, Katie Horton, Renee Smith, Steve Stranne, Kenneth Shine

CCSVI & MS the distinction.

Being able to make the distinction early in the coarse of the disease can save the quality of your life

Multiple Sclerosis is properly understood as a neurovascular syndrome; containing both a neurological component and a vascular component As understood on Tuesday May 31 2016

1, MS (Multiple Sclerosis) is a Neurological condition

2. CCSVI (Chronic Cerebral Spinal Venous Insufficiency) is a vascular condition and I believe left untouched it leads to Multiple Sclerosis

Biggest mistake I made was not doing CCSVI Venous Angioplasty early in the coarse of my disease preferably when my EDSS was below 1.5 but instead I followed the lead of my neurologist and tried their drugs to no eval until my EDSS was probably above 7 and I was a quadriplegic unable to do anything for myself even as simple as eating, bathing, dressing and other basic rudimentary things of living

CHRONIC STRESS AS THE PERFECT CATALYST

MS/CCSVI - THE SLOW STROKE

MS/CCSVI - like a toothache: One day it will be seen just as ridiculous and cruel to deny people with MS/CCSVI a simple Venous/angioplasty procedure as to deny a person with an excruciating toothache a filling; imagine if fillings where illegal?

Dr. Esther Sternberg -

Healing Spaces: The Science of Place and Well-Being

Dr. Gabor Maté: The uncomfortable truth about illnesses & childhood trauma

Dr. Esther Sternberg

The Science of Stress and How Our Emotions Affect Our Susceptibility to Burnout and Disease

Jon G. Allen, PhD, on Trauma in Attachment Relationships

Coping With Stress: Cognitive-Behavioral Stress Reduction

How childhood trauma affects health across a lifetime

The Science of Meditation

The Heart-Brain Connection: The Neuroscience of Social, Emotional, and Academic Learning

The Brain That Changes Itself. Documentary (2008)

How to Turn off the Fight, Flight, Freeze Response: Anxiety Skills #4

Norman Doidge on Neuroplasticity and the Brain's way of healing, full interview

Dr Norman Doidge, Interview excerpt on Moshe Feldenkrais

The Brain That Changes and Heals Itself (w/ Dr. Norman Doidge, U of Toronto, Columbia University)

Effects of Venous Angioplasty on Cerebral Lesions in Multiple Sclerosis: Expanded Analysis of the Brave Dreams Double-Blind, Sham-Controlled Randomized Trial.

Zamboni P1, Galeotti R2, Salvi F3, Giaquinta A4, Setacci C5, Alborino S6, Guzzardi G7, Sclafani SJ8, Maietti E9, Veroux P4; Brave Dreams Research Group.

Fooled by what is real and what is not

Is it MS, CCSVI, Lyme or its co-infections - failure at the point of diagnosis

Fooled by what is real and what is not!

Multiple Sclerosis -- falsehood to misdirect by neurologists that it is a neurological problem; when the neurological problems are caused by Vascular issues - a slow stroke - fooled

Why I believe this to be true for me is that my life was very stressed, my Mothers life was very stressed, my Grandmothers life was very stressed. Both my mother and my grand mother lived through WWII. My Mother as a little and my Grandmother as an adult Woman with a husband that was a marine

The real Multiple Sclerosis nightmare started at the point of diagnosishttp://sohomojo.ca

Coping With Stress - Imaginative Solutions for Stress Relief

Understanding Trauma: Learning Brain vs Survival Brain

Dr Jeffrey M Schwartz 'You are not your brain' at Mind & Its Potential 2011

The Mind's Influence on the Immune System - Dr. Esther Sternberg

Why place and well-being are at the new frontier of medicine | Dr. Esther Sternberg | TEDxUTA

Emotions, the brain and the body (p1). Esther Sternberg and Ian Hickie

Meningeal Lymphatics In Brain's Health and Disease - Jonathan Kipnis, PhD - LE&RN Symposium

What takes out the waste in our Brains keeping us healthy and correctly functioning; Here is the glymphatic and lymphatic systems

Jonathan Kipnis Exploring Frontiers | Rethinking the Neuroimmune System

Jonathan Kipnis, PhD, recipient of the 2018 Pioneer in Medicine

Surprise! Your Brain Has a Secret Sewer System

How Does Your Brain Clean Itself?

Do You Have an Unconscious Mind?

Melbourne Conversations: Your Brain - How it can change, develop and improve

Purpose

Norman Doige, MD: The Brain's Way of Healing

Blood Flow and Multiple Sclerosis

Dr. Gabor Mate -

Richie Davidson - The Emotional Life of Your Brain (Complete)

Richard Davidson: The Four Constituents of Well-Being

Well being is a Skill: Richard Davidson

The Heart and the Brain -

The Heart-Brain Connection: The Neuroscience of Social, Emotional, and Academic Learning

Why Vascular Medicine?

Jonathan Kipnis Exploring Frontiers | Rethinking the Neuroimmune System

Chronic Illness and Social Media | Madeleine Boyson | TEDxWallaWallaUniversity

Invisible Illness and Incommunicable Diseases: Emily Reach White at TEDxGreenville

The Hell of Chronic Illness | Sita Gaia | TEDxStanleyPark

The epidemic of chronic disease and understanding epigenetics | Kent Thornburg | TEDxPortland

Epigenetics - our bodies' way to change the destiny written in our DNA | Moshe Szyf | TEDxBratislava

Stress is not good for your immune system | Science Nature Page

Norman Doidge: Brain's Healing Energies

Melbourne Conversations: Your Brain - How it can change, develop and improve

Change Your Mind - Norman Doidge | Inside Quest #45

“It Gave Me Back Life": How Irreversible Brain Damage was Reversed

Multiple Sclerosis or Lyme disease

Is it Multiple Sclerosis or Lyme

Multiple Sclerosis- A love story

How you can improve your vascular health

Improving Quality of Care Through Disease Management

Principles and Recommendations From the American Heart Association’s Expert Panel on Disease Management

It is a good idea to listen to these people and prepare seeing an Intravenous Radiologist instead of a neurologist. Don't let neurologists diagnose you with MS

Vascular Medicine needs to be heard

Lymphatics and the immune system and looking at the human as a whole - not just its parts -everything is interconnected. Some new things we have learnt from scientists looking for the true nature of things.

Chronic Cerebro Spinal Venous Insufficiency

"Welcome to CCSVI Alliance!

Chronic Cerebrospinal Venous Insufficiency (CCSVI) is a recently documented vascular condition that may profoundly change the way we think about MS and other neurological diseases."

A life time of suffering removed by identifying a condition - CCSVI and developing a simple means of treatment - CCSVI Venous Angioplasty

Doctors' Roundtable Discussion: CCSVI Overview

Salvatore Sclafani, MD [Intravascular Ultrasound | CCSVI Symposium 2011 - 25 of 46]

The TEDMED video that introduced me to functional Medicine and taught me that their was a better way to good healthcare and at it's core it's not allopathic Medicine as practiced by conventional medicine

The despair of MS and the promise of CCSVI - Hope has arrived

Suspect MS (Multiple Sclerosis) don't let your first stop be a neurologist and have him or her label you with MS (Multiple Sclerosis) but get your Family Doctor to refer you to an Interventional Radiologist. If needed they can do CCSVI Venous Angioplasty but not in Canada it's still illegal here

MS (Multiple Sclerosis) for my experience was not an autoimmune disease at all. I followed the autoimmune theory through Neurology and I missed many of life's great moments and watched my capabilities diminish as my EDSS rose from nothing to probably upward of 7

The real Multiple Sclerosis nightmare started at the point of diagnosis
http://sohomojo.ca